Archive for the 'sleep' Category

DePaul University in Chicago is, I believe, the only university or college in the country to have a specific program designed to help students with chronic illnesses finish their degrees. I think this is a very exciting, necessary program! I only wish there were more programs like this one, and that universities were [...]


Without the imposed structure of work or school,

there are times when I forget everything I love about my life and buy into the societal belief that a lack of structure equals incompetence, laziness, and worthlessness. I’ve worked very hard to move away from this negative belief, and to realize that whatever I am [...]


I just wrote a post, complete with illustrations, and through a series of absurdly frustrating events it has been lost.

However! Instead of throwing myself to the floor and forsaking my computer, I am going to re-create the post for you. Let’s hope that the parts I forget needed to be edited anyway. [...]


snippet

15Mar07

There are many things I’ve made a note to discuss with you, sweet, faceless readers, and I can imagine writing an engaging, colorful post about them. Alas, imagining it is all you will be able to do, because I cannot summon the mental or physical energy today to write fully or well. Part [...]


Spoon Story

08Mar07

I came across this story, and while it is a bit lengthy I wanted to send you to it because it presents a great metaphor for what it’s like to have a chronic, invisible illness. For those of us who experience this, it’s validating and comforting to read about an experience similar to ours, [...]


I don’t have many friends, partly because I am a tad shy, but mostly because I don’t have a job, I’m not currently in school, and I don’t always have the ability to leave my house. It’s slightly embarrassing to admit that, but it’s my reality. It can be surprising how much of [...]


So, I wasn’t going to post because my days have been colored almost entirely with intense back pain, and who wants to hear me whine about that, right?! But then I remembered the entire point of this blog is to document my experience with FM, etc, so here I am.
I’ve felt quite [...]


I’m not having a great day, so this will be short-ish, but I thought it was important to write a post anyway. Lately I’ve been making an effort to do things even though I can’t do them as well as I’d like to. Will/desire is attempting to win out over perfectionism/paralysis.

a perfectionist:

I’ve been [...]


It’s official, I have dysautonomia!
Rob went in with me to talk with Dr. Silverman, which proved to be very helpful because as soon as we stepped out of the room I forgot several important pieces of information. Although I realize that there are many factors that effect memory, FM (and dysautonomia!) definitely [...]


I’ve been having a hard time sleeping for the last few weeks — it takes me forever to drift off, and I wake up numerous times in the night. Whenever I am lying in bed like this I seem to be More awake than during the day, my mind chatters and races, I write [...]